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Important sites on the Web

Disclaimer: All of the links provided below are for informational purposes only. Readers are encouraged to confirm the information contained herein with other sources. Patients and consumers should review the information carefully with their professional health care provider. The information is not intended to replace medical advice offered by physicians. The University of Miami Miller School of Medicine and the University of Miami will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising therefrom.

 
ADVOCACY
Association of University Centers on Disabilities
(formerly American Association of University Affiliated Programs)
This site provides a listing of interdisciplinary Centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.
http://www.aucd.org/

California Special Education Observer
News and information for parents and educators.  Site provides current articles relating to special education.  http://www.sacramentolda.org/observer/

Center for Education Advocacy
Information and services on Inclusion of children and adults with disabilities. http://www.cbsld.com/

Center on Human Policy
The CHP is a advocacy organization affiliated with Syracuse University.  The group conducts research related to the life experiences of the disabled population. The Center's Advocacy Board promotes self-determination, education, employment, and community involvement for individuals with disabilities. http://thechp.syr.edu/

Disability Advocacy Work With Networking (DAWWN)
Disability Information for parents and kids; on education; legal support; legislative; local and national groups, agencies, and organizations; spinal cord injury; managed care; assistive technology, Deaf Community Sites and more. http://home.earthlink.net/~dawwn/

Legal & Advocacy Resources
Disability related legal and advocacy resources. http://www.makoa.org/legal.htm

National Transition Alliance for Youth with Disabilities
The NTA web site provides information concerning the organization's mission, goals, and activities. The organization was established to ensure that children and adolescents with disabilities receive services and support in the areas of education, employment, independent living, and community involvement. NTA's purpose emphasizes school-to-work programs and transitions.   http://www.ed.uiuc.edu/sped/tri/kohlerdirectory2000.htm

Newsletter on Special Ed. Law
This web site pertains to educational law and advocacy and is an informational source for parents, educators, and attorneys.  Law libraries can be accessed through the site and consultations are offered.
http://www.wrightslaw.com/

PROTECTION and ADVOCACY
This site describes the purpose and origins of organizations established by congress to protect the rights of individuals with disabilities. The organizations described include: The Protection and Advocacy for Persons with Developmental Disabilities Program, The P. and A. for Individuals with Mental Illness Program, The P. and A. for Individual Rights Program, and The P an A for Assistive Technology Program. http://www.protectionandadvocacy.com/

TASH Home Page   
TASH, an international association of individuals with disabilities, advocates civil rights and justice for the disabled.  Site includes membership information, publications, and links, as well as information concerning current government legislation. http://www.tash.org/

Wrightslaw
The Special-Ed Advocate-Special Education Law. http://www.wrightslaw.com/

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ASSISTIVE TECHNOLOGY
Abilitations
A catalog company whose primary focus is serving the needs of individuals with special needs. http://www.abilitations.com/

ABLEDATA
A Federally Funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and care givers within the United States. http://www.abledata.com

Alliance for Technology Access
National wide Network of community-based resource centers, affiliates, associates, developers and vendors dedicated to providing information and support services to children and adults with disabilities, and increasing their use of standard, assistive, and information technologies. http://www.ataccess.org

Apple Computer
Information on computer access solutions for individuals with disabilities. http://www.apple.com/education/accessibility/

Closing The Gap
Focus on computer technology for people with special needs. http://www.closingthegap.com/

Disability Solutions
This site is a print publication related to Down Syndrome and related disabilities.  The site allows individuals to subscribe to the publication or register for e-mail subscriptions.  Online newsletters are also available. http://www.disabilitysolutions.org/index.htm

DO-IT Program - Disabilities, Opportunities, Internetworking, and Technology
Academic/career information, and programs promoting the use of technology for the disabled. Also, professional development for K-12 educators and post-secondary faculty and administrators. http://www.washington.edu/doit/

DREAMMS for Kids- Developmental Research for the Effective Advancement of Memory and Motor Skills)
A nonprofit parent and professional service agency that specializes in Assistive Technology related research, development, and information dissemination. http://www.dreamms.org

Family Center on Technology and Disability
This center assists organizations and programs who serve families and children with disabilities by providing information and support on accessing and using assistive technology.
http://www.fctd.info/

Florida Alliance for Assistive Services and Technology
A statewide program for information and referral on assistive technology for persons with disabilities. http://faast.org

IBM Special Needs
Homepage has a host of information on assistive technology.                   http://www-306.ibm.com/able/

National Council on Disability
The National Council on Disability is a federal agency committed to establishing equal opportunity for all individuals with disabilities.  The site provides information and news regarding current legislation.  The site provides a calendar and free newsletter. http://www.ncd.gov/

National Early Childhood Technical Assistance System
Information on I.D.E.A., Part C, publications, NECTAS archives, inclusion, and links to other resources. http://www.nectas.unc.edu/

The National Technical Assistance Consortium -NTAC
The National Technical Assistance Consortium for Children and Young Adults Who Are Deaf and Blind provides technical assistance to families and agencies serving children and young adults who are deaf-blind. http://www.tr.wou.edu/ntac

Virtual Assistive Technology Center
Provides information on free and inexpensive software helping individuals with disabilities use computers. http://vatc.freeservers.com/

WriteAway
A collaborative development effort between The Institute on Applied Technology of The Boston Children's Hospital and Information Services Inc., is a software promoting written expression and literacy. http://www.is-inc.com

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AUTISM AND RELATED DISABILITIES

Asperger Syndrome Yale
This site, affiliated with Yale Child Center Developmental Disabilities Clinic, contains a Internet survey related to Asperger's Syndrome. Site also provides: research studies, clinic information and links to related web sites.
http://www.med.yale.edu/chldstdy/autism/aspergers.html

Asperger's Disorder Homepage
Asperger's Disorder Homepage provides answers to questions related to Asperger's Syndrome and links to related sites. Questions cover topics such as epidemiology, biology, diagnostic criteria, and treatment of Asperger's Syndrome. http://www.aspergers.com/

Autism Research Institute
The Autism Research Institute's web site provides publications of studies conducted by the organization as well as diagnostic checklists, and the Autism Research Review International Newsletter. http://www.autismwebsite.com/ari/index.htm

Autism Society of America
The Autism Society of America provides opportunities and outreach to individuals with autism and their families. Membership information is available through this web site as well as research, news and conference information. http://www.autism-society.org/

CARD
The Louis de la Parte Florida Mental Health Institute provides research and training in the areas of mental health.  This site contains information about departments and programs within the institute and a web history tour of the organization.  Publications, news, and a calendar can also be found at this site.                               http://card-usf.fmhi.usf.edu/centers.asp

Center for the Study of Autism
The Center for the Study of Autism, located in Portland, Oregon, provides information and conducts research relevant to therapeutic interventions available to individuals with autism.  This site offers information, in a variety of languages, related to such topics as: Angelman Syndrome, Fragile X Syndrome, PDD, and Autism and learning styles. http://www.autism.org/

AUTISM AND RELATED DISABILITIES -HYPERLEXIA
American Hyperlexia Association
This site provides information about the organization and membership information.  The site is also a source for information about hyperplexia, contact information, and related web links. http://www.hyperlexia.org/

Down Syndrome home page
This extensive site provides information concerning worldwide organizations, events and conferences, support groups, and medical articles.  Links to related web sites are also available as well as family essays and FAQ. http://www.nas.com/downsyn/

Family Village
The purpose of Family Village is to provide resources and communication to individuals with disabilities and their families.  The site map allows individuals to search information pertaining to health, recreation, education, and support. http://www.familyvillage.wisc.edu/

National Down Syndrome Society
The National Down Syndrome Society works to increase public awareness, provide education and information, and conduct research on Down Syndrome.  This site describes the organization and their current projects and includes a on-line bookstore and contact information. http://www.ndss.org/

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DEATH AND DYING
Association for Death Education and Counseling

A multi-disciplinary professional organization dedicated to promoting excellence in death education, bereavement counseling, and care of the dying. http://www.adec.org

Children's Hospice International
Hospice care for children provides interdisciplinary services that are complementary, and that address the needs and issues of care for children and adolescents with life-threatening conditions. They also provide these services for those family members or significant others who provide the child's immediate support. http://www.chionline.org/

Grief and Healing Discussions Page
Web site that offers a board where individuals are able to post messages related to dying, illness, and grief.  The site emphasizes a safe, comforting environment where people can express their feelings and receive support. http://www.webhealing.com/forum

Griefnet
GriefNet is an Internet community of persons dealing with grief, death, and major loss. http://griefnet.org/

HospiceCare.com
This site provides online resources for care providers, patients, and families. http://www.hospicecare.com/

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DISABILITIES - RESOURCES (GENERAL)
AACAP Resources for Families
This web site provides families with information related to developmental, emotional, behavioral, and mental disorders in children and adolescents.  The site offers publications, and press releases, as well as training  and membership information.  A search option is contained within this site. http://www.aacap.org/

Ability A-Z
Ability is a voluntary group established to fulfill the needs of the disabled.  The organization also provides computer technology and resources to individuals with disabilities.  This web site offers a search engine that is easily accessible to most individuals with a disability. http://www.ability.org.uk/index1.html

Alliance for Technology Access
National wide Network of community-based resource centers, affiliates, associates, developers and vendors dedicated to providing information and support services to children and adults with disabilities, and increasing their use of standard, assistive, and information technologies. http://www.ataccess.org/

AOTA American Occupational Therapy Association
This source provides information about AOTA Inc.  This site contains information, publications, and news and is also a resource for education and research events in the occupational therapy field.  http://www.aota.org/

Bandaides and Blackboards
A resource to help those growing up with a chronic illness and their parents. There are separate areas for kids, teens, and adults. http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/

Children with Disabilities
This web site offers families, service providers, and other interested individuals information about advocacy, education, employment, health, housing, recreation, technical assistance, and transportation. http://www.childrensdisabilities.info/

CODI - Cornucopia of Disability Information
CODI contains lots of disability links to different categories including employment, legal info, government publications, technology, and many others. Also, the site includes a national directory of Centers for Independent Living. http://codi.buffalo.edu/

Disability Products
Disability Products offers trustworthy, secure online shopping for assistive devices and daily living aids that support independent living for the handicapped and disabled, seniors, or those with a medical condition or injury.  http://www.disabilityproducts.com/

Disability Advocacy Work With Networking -DAWWN
Disability Information for parents and kids; on education; legal support; legislative; local and national groups, agencies, and organizations; spinal cord injury; managed care; assistive technology, Deaf Community Sites and more. http://home.earthlink.net/~dawwn/

Disabled Hotline
Lots of good links, a 24-hour telephone hotline, access to instructional videos and Disabled Hotline's public access television programming, a calendar of events and more. http://www.disabledhotline.com/index.html

DisabilityInfo.gov
DisabilityInfo.gov is the federal government's one-stop Web site for information of interest to people with disabilities, their families, employers, service providers and many others. http://www.disabilityinfo.gov

The Disability Link Barn
Different links on ADA; Disability Rights; Disability journals, magazines, online books; Medical Resources; Personal Home Pages; Rehabilitation; Sexuality & Dating; Sports & Entertainment; The Arts; Travel; Vocational. http://www.accessunlimited.com/html/link_barn.html

Disability Tables
This site has disability tables and statistics useful when writing those advocacy letters and just good to be aware of. http://www.icdi.wvu.edu/disability/tables.html

The Future of Children
Dissemination of timely information on major issues: access, disability and health insurance. http://www.futureofchildren.org/

Florida Children's Dentist
A directory of Florida pediatric dentists and other dentistry professionals who provide dental care to children. http://www.childrens-dentist.com/florida.html

Florida Institute for Family Involvement
A Family organized and directed project that focuses on three major activities: The promotion of partnerships with policy-makers and service providers; The development of a statewide family organization; and The identification and support of new and existing family leaders. http://www.fifionline.org/

Global Access-Disabled Travel Network
Global Access hopes to minimize that travel planning trauma by providing a web site for disabled travelers to share their experiences. This site includes an archive of interesting exotic vacations, tips on traveling with a disability, and much more. http://www.globalaccessnews.com/

Internet Resources for Special Children (IRSC)
Information for parents, family members, caregivers, friends, educators, and medical professionals who interact with children with disabilities. http://www.irsc.org

Legal & Advocacy Resources
Disability related legal and advocacy resources. http://www.makoa.org/legal.htm

NARIC's Instant Disability Information Center
Disability database. http://www.naric.com/search/

National Arts and Disability Center
The national information dissemination, technical assistance and referral center specializing in the field of arts and disability. http://nadc.ucla.edu

National Institute on Disability and Rehabilitation Research
The United States Department of Education’s Office of Special Education and Rehabilitative Services (OSERS), through its National Institute on Disability and Rehabilitation Research (NIDRR), conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment, and independent living of disabled individuals of all ages. http://www.ed.gov/about/offices/list/osers/nidrr/

The National Rehabilitation Information Center-Home Page
Up-to-date information, databases, publications and services on various disabilities. http://www.naric.com/

PACER Center
Programs that help parents become informed and effective representatives for their children in early childhood, school-age and vocational settings. http://www.pacer.org/

Palaestra-Forum of Sport, Physical Education and Recreation for those with Disabilities
This site helps many: education for parents in all aspects of physical activity especially for IEP (Individual Education Plan) advocacy with the schools, information for professionals working with children or adults with disabilities, and more. http://www.palaestra.com

Parents with Disabilities Online
Resources for parents with disabilities, Empowerment Networks, Medical Information, Adaptive Parenting Aids, and other links. http://www.disabledparents.net/index.html

Quackwatch, Inc.
A nonprofit corporation whose purpose is to combat health-related frauds, myths, fads, and fallacies. http://www.quackwatch.com/

The Sibling Support Project
A national program dedicated to the interests of brothers and sisters of people with special health and developmental needs. http://www.siblingsupport.org/

Smithsonian Disability Rights Movement Exhibition
This is a virtual tour of the Smithsonian exhibit on the Disability Movement. http://americanhistory.si.edu/disabilityrights/welcome.html

Special and disABLED Access Center
Access-related web sites, support and advocacy organizations, and links to other resources. http://www.lafn.org/medical/special_needs/

Special Olympics
Global headquarters for the worldwide Special Olympics Movement, providing year-round sports training and competition for more than one million athletes. http://www.specialolympics.org/

UNICEF-United Nations Children's Fund
Home page for UNICEF. http://www.unicef.org/

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EPILEPSY
Epilepsy FAQ
This web site contains questions and answers pertaining to epilepsy. Some of the topics covered are types of seizures, diagnosis, and treatment. http://www.faqs.org/faqs/medicine/epilepsy-faq/

Epilepsy Foundation
The Epilepsy Foundation provides research, education, advocacy and service to individuals with epilepsy.  Within this site, information related to seizure medication, partial seizures, surgery, and information for teachers can be found.  News and publications can also be accessed through th
is web site
http://www.epilepsyfoundation.org/

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FAMILY NETWORK ON DISABILITIES OF FLORIDA (FND)
Family Network on Disabilities of Florida
The Family Network on Disabilities of Florida is an organization of individual with disabilities and their families.  This family-supported group promotes education and advocacy. The site includes a mailing list, publications, membership information and provides links to related sites. http://www.fndfl.org/

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GENETIC/CHROMOSOMAL ABNORMALITIES
Genetic Counselors NSGC Directory
The NSGC promotes genetic counseling and its relationship to healthcare, education, research, and legislation.  This site contains publications and conferences schedules as well as providing resources and training programs.
http://www.nsgc.org/resourcelink.cfm

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HEARING IMPAIRMENT/DEAFNESS

ASL Browser
The ASL Browser web site, an online American Sign Language (ASL) browser where you can look up video of thousands of ASL signs and learn interesting things about them.
http://commtechlab.msu.edu/SITES/ASLWEB/index.htm

ASL Recources
http://www.deafe.org/links/categories/asl.htm

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HEALTH/MEDICAL ISSUES
ADA-Americans with Disabilities Act

ADA Home page. http://www.usdoj.gov/crt/ada/adahom1.htm

The Administration for Children and Families/Department of Health and Human Services site includes a list of their programs, web sites, and overview of what they do. http://www.acf.dhhs.gov/

Agency for Health Care Policy and Research
Provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues. http://www.ahcpr.gov/

American Academy of Pediatrics
The American Academy of Pediatrics web site offers the ability to search the site for information related to pediatrics.  Research, news and publications are available through this site as well as an online bookstore. http://www.aap.org/

Centers for Medicare & Medicaid Services
Website with information and resources on Medicare and Medicaid. Brows by provider type or special topics. http://www.cms.hhs.gov/

Developmental and Behavioral Pediatrics Home Page (National)
The Pediatric Development and Behavior Online Community offers many resources such as articles, news, and discussions.  The site also provides links to other web sites and information concerning affiliated organizations. http://www.dbpeds.org/

Dr. Koop's Community on the Web
This web site offers informational resources related to health and wellness.  Users may browse through eighty health topics and can access literature related to a variety of health-related issues. http://www.drkoop.com/

Healthfinder
Healthfinder(tm) is a gateway consumer health and human services information web site from the United States government. http://www.healthfinder.gov/

Health Resources and Services Administration
HRSA directs national health programs which improve the health of the Nation by assuring quality health care to underserved, vulnerable and special-need populations and by promoting appropriate health professions workforce capacity and practice, particularly in primary care and public health. http://www.hrsa.gov/

National Center for Chronic Disease Prevention and Health Promotion This site includes comprehensive approaches, specific population information, data systems on risky behaviors, Maternal & Infant Health Info., Publications and Products, Training and other links. http://www.cdc.gov/nccdphp/

National Center of Health Statistics
This site includes information on GIS and Public Health, Micro Data Systems, Top 10 Download sites, Tabulated State Data. http://www.cdc.gov/nchswww/

National Institutes of Health
NIH health resources including CancerNet, AIDS information, Clinical Alerts, the Women's Health Initiative and the NIH Information Index(a subject-word guide to diseases and conditions under investigation at NIH). http://www.nih.gov/

National Library of Medicine (NLM)
This is the world's largest medical library. It collects materials in all major areas of the health sciences. Included is Health Information, Library Services, Research Programs, Information on Exhibits, and General Information. http://www.nlm.nih.gov/

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INCLUSION
Center for Education Advocacy
Information and services on Inclusion of children and adults with disabilities. http://www.cbsld.com/

The United States Senate
The United States Senate's web site provides information concerning legislative activities and committees.  The site allows users to contact the senators by state of residence. http://www.senate.gov/

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LEARNING DISABILITIES
Don Johnston Incorporated
Provides solutions for students who struggle with reading and writing and for students with disabilities. http://www.donjohnston.com/catalog/catalog.htm

The Gifted Learning Project
The Gifted Learning Project is a grass-roots non-profit (501(c)3) organization started and operated by people who have learning disabilities and/or who have immediate family members with learning disabilities. http://www.giftedlearningproject.org/

LD Online: LD In-Depth
This site is a source for parents, teachers, and children and provide them with information related to disabilities.  The site offers a newsletter and individuals are able to search the site to locate an organization or person within an organization.  The site also contains a online store and KidZone. http://www.ldonline.org/indepth

Learning Disabilities Association of America (LDA)
Learning Disabilities Association of America is a non-profit organization dedicated to promoting the education and well-being of children and adults with perceptual, conceptual or coordinative disabilities.  The site contains publications, resources, event calendars, membership information, and contact information.  An online bookstore is also available. http://www.ldanatl.org/

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MEDICAID/SSI
Centers for Medicare & Medicaid Services (CMS)

Formerly the Health Care Financing Administration. This is the new name for the federal agency that runs the Medicare and joint federal-state Medicaid programs. http://www.cms.hhs.gov/

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ORGANIZATIONS AND PROGRAMS
Acoustic Neuroma Association
This site provides information and a search engine allowing individuals to explore the neurosurgical services available at Massachusetts General Hospital.  The Acoustic Neuroma Association information is contained within this site.  Research, publications, news and support groups can also be accessed through this site. 
http://www.neurosurgery.mgh.harvard.edu/ana

Alexander Graham Bell Association for the Blind
The Alexander Graham Bell Association for the Deaf and Hard of Hearing is comprised of parents of children, adults, and professionals.  The group provides information and support for the deaf and hard of hearing.  This web site offers publications, contact information, and news. http://www.agbell.org/

American Academy of Pediatrics
American Academy of Pediatrics web site offers the ability to search the site for information related to pediatrics. Research, news, and publications are available through this site as well as an online bookstore. http://www.aap.org/

American Council for the Blind
The American Council for the Blind web site which provides information about the organization and online issues of the publication, The Braille Forum.  The site also contains information about the organization's radio station and information concerning affiliated organizations.  http://www.acb.org/

American Diabetes Association
The American Diabetes Association web site offers information on a variety of topics related to Diabetes.  Information regarding nutrition, exercise, and drug therapies can be found here.  Also within this web site are publications, membership and volunteer information, current research and advocacy issues, and employment opportunities.  
http://www.diabetes.org/

American Occupational Therapy
This source provides information about The American Occupational Therapy Association, Inc.  The site contains membership information, publications, and news.  This site is also a resource for educational and research events in the occupational therapy field. http://www.aota.org/

American Physical Therapy Association
The American Physical Therapy Association's web site offers information and news related to research, education, events, and advocacy.  Product and services can accessed online as well as publications such as the Physical Therapy Magazine and Physical Therapy Journal. http://www.apta.org/

American School Directory
The American School Directory is a source for families and educators providing information about 108,000 schools in the nation.  This site offers free e-mail and an online catalog of educational materials. http://www.asd.com/

American Speech and Hearing Association
The American Speech-Language-Hearing Association offers this web site as an informational resource.   Publications, research and advocacy info, and membership information is contained within this web site  http://www.asha.org/default.htm

American Spinal Injury Association
The American Spinal Injury Association promotes health and provides education related to spinal cord injury.  This web site offers membership information, access to publications, and information concerning current research. http://www.asia-spinalinjury.org/

Amputee Information Network
Mailing list to provide information and support contacts to children with absent or underdeveloped limbs and their parents. It also offers lots of other info and resources. http://www.amp-info.net/

Apraxia Kids Home Page
The Apraxia Kids web site is an informational resource for parents who have children with apraxia of speech.  The site offers answers to FAQs as well as information concerning specific topics in speech and language. http://www.apraxia-kids.org/

Association for Retarded Citizens of the United States (ARC)
The ARC of the United States is an association of individuals with mental retardation and their families.  The site provides answers to frequently asked questions as well as providing publications and videos.  Individuals may join the ARC, make a contribution, and register for events through this web site. http://thearc.org/

Attention Deficit Hyperactivity Disorder (NIMH)
The National Institute of Mental Health provides information related to Attention Deficit Hyperactivity Disorder.  The site answers FAQs related to the subject as well as providing informational resources. http://www.nimh.nih.gov/publicat/

CHADD Children and Adults with Attention Deficit Disorder
CHADD is a national organization committed to providing support and education to the families of children with AD/HD.  The web site contains membership information, new releases, and provides links to other helpful web sites.  Find the chapter located closest to your home through this site. http://www.chadd.org/

Disability Solutions
A resource for families and others interested in Down Syndrome. http://www.disabilitysolutions.org/

Education Week on the Web
Education Week on the Web provides magazines, daily news and special reports related to education.  Products may be purchased and employment opportunities are also posted online. http://www.edweek.org/

Family Education Network
Familyeducation.com provides informational resource for parents. The site contains information and links related to education, parenting challenges, and special needs such as ADHD.  Over 23 free newsletters can also be requested and sent by providing and e-mail address.  http://www.familyeducation.com/

Family Village
A global community of disability-related resources. http://www.familyvillage.wisc.edu/

Federal Resource Centers main page
The Federal Research Center for Special Education is a technical assistance network for education professionals.  The organization is funded by the US DOE and holds national meetings and conferences concerning current issues in special education.  http://www.rrfcnetwork.org/

Florida Developmental Disabilities Council
Developmental and administration of services for people with developmental disabilities. Guides for planning and funding research, innovations, and programs to improve quality of life. http://fddc.org/

National Council on Disability (NCD)
The National Council on Disability is a federal agency that advises the President and Congress on disability related issues.  The group promotes equal opportunity for individuals with disabilities and encourages independent living and self-sufficiency.  
http://www.ncd.gov/

National Information Center for Children and Youth with Disabilities
NICHCY is an information and referral center that provides information for families and educators.  The center focuses on children and youth with disabilities and provides access to publications, news, and information from other organizations. http://www.nichcy.org/

National Organization for Down Syndrome
National Association for Down Syndrome (NADS), a not-for-profit organization, was founded in Chicago in 1961 by parents of children with Down syndrome who felt a need to create a better environment and bring about understanding and acceptance of people with Down syndrome. http://www.nads.org/

National Transition Alliance for Youth with Disabilities
The NTA web site provides information concerning the organization's mission, goals, and activities. The organization was established to ensure that children and adolescents with disabilities receive services and support in the areas of education, employment, independent living, and community involvement. NTA's purpose emphasizes school-to-work programs and transitions.   http://www.ed.uiuc.edu/sped/tri/kohlerdirectory2000.htm

Virginia Commonwealth University RRTC on Workplace Supports and Job Retention
The purpose of the Virginia Commonwealth University RRTC on Workplace Supports and Job Retention is to study those supports that are most effective for assisting individuals with disabilities maintain employment and advance their careers. http://www.worksupport.com/index.cfm

SERI - Special Education Resource on the Internet
This web site provides information relate to different areas within special education.  Learning disabilities, Attention Deficit Disorder, Mental Retardation, speech and physical disorders, behavior disorders, and vision and hearing impairment are all addressed by this source.  The site also offers online discussion groups and legal resources. http://seriweb.com/

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PARENT MATCHING
Med Help International ™
Med Help International's goal is to provide current medical information to the public.  The site will assist patients in their decisions concerning treatment options.  Within this site a variety of topics are covered:  addiction, child behavioral health, dermatology, gastroenterology, heart, hepatitis, and neurology.  The site also has a search engine allowing individuals to search for topics or support groups and the patient-to-patient network. http://www.medhelp.org/

Genetic Alliance
Genetic Alliance is dedicated to improving the quality of life for everyone living with genetic conditions. We are committed to capacity building in all communities. The technical assistance we provide to advocacy organizations results in measurable growth: increased funding for research, access to services, and support for emerging technologies. http://www.geneticalliance.org/

Families of Spinal Muscular Atrophy
The Families of Spinal Muscular Atrophy web site provides research articles and news as well as fundraising activities and an opportunity to interact with members.  The site also contains information on Spinal Muscular Atrophy and the information concerning the advancement in the search for a cure.  http://www.curesma.org/

Parent Matching Organizations
The Down Syndrome WWW page contains parent matching and support group as well as medical articles and family essays.  Links to Down Syndrome health issues and Family Village are available through this site. http://www.nas.com/downsyn/parent.html

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POSITIVE BEHAVIORAL SUPPORT
Behavior Analysis Inc. links
This new web site provides education, training, treatment, consultation related to behavior issues in the educational environment and special needs.  All of the treatments offered by Behavior Analysis and Therapy Inc. are supported by evidence and research. http://www.behavioranalysis.com

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STATE DEPARTMENTS OF EDUCATION (SEAs) - Florida
Florida Dept. of Education Bureau of Exceptional Education and Student Services
The Bureau of Exceptional Education and Student Services web site is a resource for children, parents, and teachers.  Publications and research can be accessed as well as links to other sites related to the Florida Department of Education
. http://www.firn.edu/doe/bin00014/home0014.htm

Florida Dept. of Education/Florida DOE Links to Other Resources
This page provides links related to topics and such as Florida school laws, disabilities and special education.  Individuals can also be connected to the websites of organizations such as The American Printing House for the Blind, Council for Exceptional Children, National Association for School Psychologists, and National Early Childhood Technical Assistance System. 
  http://www.firn.edu/doe/bin00014/linkhome.htm

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STATE LEGISLATURE
Florida Legislature - Online Sunshine

Online Sunshine is the official guide to the State of Florida Legislature.  The House of Representatives and the Senate sections in this web site contain information regarding weekly and interim reports, bills, and committees.  Lobbyist information is also available as well as daily calendars and journals.
  http://www.leg.state.fl.us/

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U.S. DEPARTMENT OF EDUCATION
OCR U.S. Dept. of Education Office for Civil Rights
The U.S. Dept. of Education-Office for Civil Rights was established to guarantee equal educational access to all individuals.  The web site offers publications and contact information as well as a search option and links to related web sites. http://www.ed.gov/about/offices/list/ocr/index.html?src=mr

OSERS: Office of Special Education Programs (OSEP)
This site provides access to publications, studies, and related links.  This site also offers information concerning current projects within the Office of Special Education Programs. http://www.ed.gov/about/offices/list/osers/osep/index.html?src=mr

U.S. Dept. of Education (ED) http://www.ed.gov/

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